Children treated for retinoblastoma are at risk for recurrence of the cancer in and around the treated eye. For this reason, your child’s doctor will schedule further check-ups to check for recurrent retinoblastoma. Your doctor may schedule a personal follow-up examination for your child. In most cases, this probably includes eye exams every few months for the first few years after the end of retinoblastoma treatment.


In addition, children with an inherited form of retinoblastoma are at risk for other types of cancer in any part of the body in the years after treatment. Because of this, children with inherited retinoblastoma may have regular checkups for other cancers.


In most cases, doctors are not sure what causes retinoblastoma, so there is no proven way to prevent the disease.

Prevention for families with inherited retinoblastoma

Retinoblastoma cannot be prevented in families with an inherited form of retinoblastoma. However, genetic testing enables families to know which children are at risk for retinoblastoma, so eye exams can begin at an early age. Thus, retinoblastoma may be diagnosed very early – when the tumor is small and there is still a chance to improve and maintain vision.

Retinoblastoma children

If your doctor determines that your child’s retinoblastoma is caused by an inherited genetic mutation, your family may be referred to a genetic counselor.

to determine whether:

Your child is at risk for other cancers associated with retinoblastoma.

Your other children are at risk for retinoblastoma and other related cancers, so they can start eye exams at an early age.

You and your spouse can pass on the genetic mutation to future children.

A genetic counselor can discuss the risks and benefits of genetic testing and help you decide if you, your spouse, or your other children are being tested for a genetic mutation.

# Eye – Genetics – Retinoblastoma – Eye examination – Cancer – Genetic mutation – Cancer – Eye examination – Hereditary – Genetic testing